Couple pay >$800k for a gene-editing therapy for their daughter. She died.

	Couple pay >$800k for a gene-editing therapy for their daughter. She died.(science.org)
	350 points by Shortness8 1 day ago \| 226 comments
	tl;dr: Summary not available
	HN Discussion: ↑Scientific critique of AAV vector choice for brain gene therapy given known immune risks ↑Ethical outrage at doctors downplaying risks and ignoring warning signs from animal studies ↑Treatment was inappropriate for a non-lethal condition when better candidates exist •Cultural context in China around developmental delays shaped the family's decision ↑Negative research outcomes must be published as prominently as successes to advance the field